Lyme rash blog continued

I started this blog in June to help educate about Lyme particularly about the rash. I haven't written much because my mother was in the hospital for 3 months and passed away. Now I plan to work on all those things I started including this blog. There is
SO much confusion and misinformation about LYME, even about the rash! As stated in my first blog the rash began as an OVAL rash on my chest and gradually expanded. I should have taken a picture but I didn't know. I also should have received treatment when I only had the one oval rash. Instead the bacteria began to spread and the next week I developed 2 more rounded rashes on my legs. I should have taken pictures of those rounded rashes too. Multiple lesions are present less than 10% of the time and do represent disseminated disease. I finally started to receive treatment on June 13,2008 which was 10 days after the initial rash. The dermatology office perscribed 100 mg of Doxycycline twice a day for 21 days. During that time I developed horrible headaches, felt hot and cold, low blood pressure, insomnia,paresthesia and various other symptoms that would come and go...The worst symptom was the burning legs, 24 hours a day. I could not stand to have anything against my legs ( socks, blanket, pants). My legs literally felt like they were on fire ALL the time for ~ 7 months. I saw 2 neurologist, the first one was June 30, 2008 which was 27 days after the initial rash. The neurologist did an EMG on both lower legs and found no irregularities. Why did I still have this burning pain 24 hours a day?? I asked for more doxycycline and took a total of 4 weeks of that med but yet many symptoms persisted and my legs burned constantly. I researched and read whatever I could get my hands on.... I had to sort through SO much and basically became my own doctor and researcher.... I discovered that the neurological damage(parethesia) may take months or longer after finishing antibiotics because the nervous system regenerates only one or two milimeters each day and needs time to heal. I also found that time and cold helped my legs. Once winter and the cold weather arrived my legs gradually improved but I was left with swollen and sore ankles. I was told that a LLMD(LYME LITERATE MD) was the person to see so I made an appt in Aug with my first LLMD. I saw a total of FIVE Lyme friendly or LLMD's... What an experience that was!! I will write more about my experiences with the LLMD's in future blogs.